Monday, March 4, 2013

For preemie parents, (Parents of Preemies Day 2013)

A Time to Mourn

Around 16 weeks along into my first pregnancy I was elated to finally be over the extreme morning sickness I'd experienced for the past several weeks. Feeling better, my mind pondered many questions. Would my baby be a boy..or a girl? Whose looks would he/she favor?  These mysteries and more captivated my thoughts.   I purchased several cute maternity outfits, anticipating the day my stomach would grow large enough to need them.

But they were never to be worn.

Our daughter shocked everyone with her entrance into this world because at 23 weeks, 1 day gestation she was born too soon

Upon her birth, we were catapulted onto the ride of our lives.  Some refer to it as a rollercoaster; others, as a marathon.  No matter the analogy used to describe it, all would agree that life in the NICU is a journey of a lifetime.  

We found ourselves in the midst of a journey for which we were unprepared, marked with twisting paths scaling treacherous terrain.  We knew we needed courage and strength for the days ahead; but as I first gazed upon her helpless, fragile body, I didn't feel very brave.  Then the realization sunk in:

We were parentsHer parents.

Parents of a {micro} preemie.

A Time to Celebrate

Graham's Foundation is setting aside a day to celebrate every parent of a preemie with the second annual Parents of Preemies Day this Sunday, March 10. This day of awareness recognizes the courage and commitment it takes to stay strong and resilient when premature birth turns a family's world upside down.

If you're a parent (or grandparent) of a preemie, you're invited to participate in a variety of ways from sharing photos and stories on the Parents of Preemies Day Facebook page, to attending local events hosted in your area.

As part of this year's Parent's of Preemies Day, Graham's Foundation is also hosting a live twitter chat, allowing moms and dads, NICUs, and prematurity professionals to join together in celebrating the strength and resilience demonstrated by parents of preemies at all stages of the journey.  I'll be participating in the chat as well and would love to hear from you there! {You can find me @JourneyOurLife}

Whether you're a parent or grandparent of a preemie or a supporter of those who are, we'd love for you to join us in spreading the word about Parents of Preemies Day, helping to share the message worldwide.

Your Journey:  Are you a parent of a preemie?  Or do you know someone who is?  Please feel free to share your story in the comments!

1 comment:

  1. My daughter was born on December 21 2012, at 10:18 am weighing 1lb 7oz at 26 weeks gestation. She was intubated for the first week of her life, and not being able to touch her or hold her broke my heart. On day 8 in the nicu she was extubated and put onto cpap. On day 16 her poor little lungs got tired and she was reibtubated for another 5 weeks. The doctors told us she had chronic lung disease and would have to be put on steroids to speed up the development of her lungs. 3 days after the steroids were started she came iff the vent and went onto cpap once again. 3 weeks after being off cpap she was taken off and put onto high flow. She continues to be on high flow, weighs 5lb 4oz. We thought that was going to be the end of the bad news. Wrong. Her opthamologist told us 3 days ago that she has stage 3 ROP and needs laser surgery. Hoping all goes well and my little girl will live a normal life. Being a preemie parent has changed my life. It teaches you to cherish the small things, and never give up hope. Live everyday like its your last, and most of all love like youve never loved before, because your loved ones can be there one day and gone the next.


I consider it a privilege to share my story with you, but the greatest blessing? When you share yours! Feel free to share your heart by commenting.

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