tag:blogger.com,1999:blog-2635546954960489257.comments2015-02-19T14:09:49.466-05:00This Journey Our LifeRachelhttp://www.blogger.com/profile/08581856966246498735noreply@blogger.comBlogger379125tag:blogger.com,1999:blog-2635546954960489257.post-23458530480412508852013-03-18T10:37:29.644-04:002013-03-18T10:37:29.644-04:00While my trials are a mere fraction of yours, many...While my trials are a mere fraction of yours, many of these struck a chord. Thanks for sharing!Lauriehttp://www.blogger.com/profile/14795999492292710025noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-77877518288334619052013-03-18T10:37:09.340-04:002013-03-18T10:37:09.340-04:00While my trials are a mere fraction of yours, many...While my trials are a mere fraction of yours, many of these struck a chord. Thanks for sharing!Lauriehttp://www.blogger.com/profile/14795999492292710025noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-87075693498754590792013-03-07T14:31:29.871-05:002013-03-07T14:31:29.871-05:00My daughter was born on December 21 2012, at 10:18...My daughter was born on December 21 2012, at 10:18 am weighing 1lb 7oz at 26 weeks gestation. She was intubated for the first week of her life, and not being able to touch her or hold her broke my heart. On day 8 in the nicu she was extubated and put onto cpap. On day 16 her poor little lungs got tired and she was reibtubated for another 5 weeks. The doctors told us she had chronic lung disease and would have to be put on steroids to speed up the development of her lungs. 3 days after the steroids were started she came iff the vent and went onto cpap once again. 3 weeks after being off cpap she was taken off and put onto high flow. She continues to be on high flow, weighs 5lb 4oz. We thought that was going to be the end of the bad news. Wrong. Her opthamologist told us 3 days ago that she has stage 3 ROP and needs laser surgery. Hoping all goes well and my little girl will live a normal life. Being a preemie parent has changed my life. It teaches you to cherish the small things, and never give up hope. Live everyday like its your last, and most of all love like youve never loved before, because your loved ones can be there one day and gone the next.mckay21http://www.blogger.com/profile/03145054075567713287noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-30127086244923350492013-02-22T10:58:26.674-05:002013-02-22T10:58:26.674-05:00I enjoyed your post today. I have memories of your...I enjoyed your post today. I have memories of your Mom&#39;s singing too...every morning as we got ready for class. And whenever I hear or sing the hymn &quot;Does Jesus Care&quot; I think of her.Sherryhttp://www.blogger.com/profile/14591514317460821931noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-82264904147482698352013-02-22T10:57:43.871-05:002013-02-22T10:57:43.871-05:00I enjoyed your post today. I have memories of your...I enjoyed your post today. I have memories of your Mom&#39;s singing too...every morning as we got ready for class. And whenever I hear or sing the hymn &quot;Does Jesus Care&quot; I think of her.Sherryhttp://www.blogger.com/profile/14591514317460821931noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-17316366232454723642013-02-22T10:50:50.058-05:002013-02-22T10:50:50.058-05:00Love this. What a treasure, of a mama&#39;s love.Love this. What a treasure, of a mama&#39;s love. Jenhttp://www.blogger.com/profile/16712626533152641118noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-38369423591135467412013-02-22T10:50:43.058-05:002013-02-22T10:50:43.058-05:00Love this. What a treasure, of a mama&#39;s love.Love this. What a treasure, of a mama&#39;s love. Jenhttp://www.blogger.com/profile/16712626533152641118noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-64403835578419275972013-02-11T21:48:58.368-05:002013-02-11T21:48:58.368-05:00Rest well, friend! Psalms 46:10 - &quot;Be still ...Rest well, friend!<br /><br />Psalms 46:10 - &quot;Be still and know that I am God.&quot;<br /><br />http://bakerisourdreamcometrue.blogspot.comJennifer Bellhttp://www.blogger.com/profile/16333952463989693365noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-46190153683647551492013-02-11T13:56:00.571-05:002013-02-11T13:56:00.571-05:00I love her spinning too. My girls BEG to spin like...I love her spinning too. My girls BEG to spin like Cami and not get dizzy.<br /><br />Thanks for the reminder to slow down and wait for a response. I will!!!<br /><br />Hugs.Jenhttp://www.blogger.com/profile/16712626533152641118noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-79751872075295002512013-02-10T08:08:30.053-05:002013-02-10T08:08:30.053-05:00Thanks for visiting my blog! I just read your gue...Thanks for visiting my blog! I just read your guest post--wow!! You were speaking to my heart. There is definitely a new level of understanding among special needs moms. Juliehttp://www.blogger.com/profile/13004724438756137490noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-2749209306021636582013-01-29T08:24:54.587-05:002013-01-29T08:24:54.587-05:00my son was 23 weeks weighing in at 1 pound 3 ounce...my son was 23 weeks weighing in at 1 pound 3 ounce. He was the smallest baby I have ever seen. His name is Mateo meaning gift of God or ( or a gift that only a loving God give). He came home 16 days before his due date on vitamins only.. God is still that good. I will pray for your friends to see the same miracle a saw unfold right before my eyes and that good will give them peace to let him do the work, Amenkeisha peakshttp://www.blogger.com/profile/07136270925894629949noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-73713181932102052392013-01-29T08:13:44.224-05:002013-01-29T08:13:44.224-05:00my son was 23 weeks weighing in at 1 pound 3 ounce...my son was 23 weeks weighing in at 1 pound 3 ounce. He was the smallest baby I have ever seen. His name is Mateo meaning gift of God or ( or a gift that only a loving God give). He came home 16 days before his due date on vitamins only.. God is still that good. I will pray for your friends to see the same miracle a saw unfold right before my eyes and that good will give them peace to let him do the work, Amenkeisha peakshttp://www.blogger.com/profile/07136270925894629949noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-71575295296891182522012-12-07T23:06:47.837-05:002012-12-07T23:06:47.837-05:00Every new achievement is a blessing. Thanks for sh...Every new achievement is a blessing. Thanks for sharing Cami&#39;s progress. Have a blessed Christmas. Julie Taylorhttp://www.blogger.com/profile/02041892495154901762noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-59971516663129577942012-11-17T22:34:40.883-05:002012-11-17T22:34:40.883-05:00I was born at 26 weeks gestation. Weighed 1 lb. 13...I was born at 26 weeks gestation. Weighed 1 lb. 13 oz. In a few weeks, I&#39;ll be 39. I have 3 kids. My first child was 10 days over her due date and 8 lbs. 10 oz. I couldn&#39;t believe it. I did lose two pregnancies at 8 wks. and 11 weeks, but I have 3 children with me yet whom I dearly love. Life, to me, is a privilege. I honor God with my life. And I applaud the medical team who kept me alive!Rosanna Brubackerhttp://www.blogger.com/profile/16576487374589097523noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-46749356312640425462012-10-11T21:21:05.603-04:002012-10-11T21:21:05.603-04:00Love you and her!!Love you and her!!Susy Lambhttp://www.blogger.com/profile/05174441649932909234noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-13993749228637104952012-10-11T21:15:14.058-04:002012-10-11T21:15:14.058-04:00Beautiful and so thought provoking. Beautiful and so thought provoking. Susy Lambhttp://www.blogger.com/profile/05174441649932909234noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-28816906187789420952012-10-05T13:38:39.407-04:002012-10-05T13:38:39.407-04:00Thanks for following along, glad you&#39;re enjoyi...Thanks for following along, glad you&#39;re enjoying it! =)Rachelhttp://www.blogger.com/profile/08581856966246498735noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-16312372657917962682012-10-05T13:24:22.781-04:002012-10-05T13:24:22.781-04:00This breaks my heart. I pray that no one ever fee...This breaks my heart. I pray that no one ever feels unwelcome around me and that I will have compassion and love for all those the Lord brings across my path. Cami knows she is ALWAYS welcome at Nana and Papa&#39;s house. We love her, Lucas, and Sophia so much! (You and Rudy,too LOL).<br /><br />MomAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-21575706985830437822012-10-05T12:53:04.720-04:002012-10-05T12:53:04.720-04:00Thank you so much for this! I cried...just a litt...Thank you so much for this! I cried...just a little. Good tears. Thank you.<br /><br />Ursula xxExtravagant Joyhttp://www.extravagantjoy.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-66001164868083125582012-10-04T23:17:24.448-04:002012-10-04T23:17:24.448-04:00wow, Rachel! Can&#39;t imagine. Never have exper...wow, Rachel! Can&#39;t imagine. Never have experienced the sense of loss and hurt and fear that you have in that way. I am sure that you have a stronger faith in God than most because of it. Your words express your feelings and story beautifully too.Christinahttp://www.blogger.com/profile/03277740633375777499noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-40151487191862641702012-10-03T18:25:49.866-04:002012-10-03T18:25:49.866-04:00Love your sweet spirit, Rachel. While mine was no...Love your sweet spirit, Rachel. While mine was not a diagnosis of health issues for my child, it was rather a diagnosis of loss through miscarriage. It rocked my world. What did I do wrong? Why me? Would I be able carry future babies? <br /><br />Fear and mental anguish are very real. And like you&#39;ve shared, in all diagnoses, there is definitely a period of grief, healing and moving on. God&#39;s grace and strength are certainly strongholds during uncertain times. Thanks for your openness to share with others.Heatherhttp://www.thriftystories.comnoreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-56925352267053159242012-10-03T15:19:47.222-04:002012-10-03T15:19:47.222-04:00Thank you for taking time to stop by...and for you...Thank you for taking time to stop by...and for your kind comment. I&#39;ve been blessed in meeting other parents and looking forward to following along in your journey!<br /><br />Blessings to you,<br />Rachel<br /><br /><br />Rachelhttp://www.blogger.com/profile/08581856966246498735noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-23643080956471898072012-10-03T15:18:27.071-04:002012-10-03T15:18:27.071-04:00Nice to meet you! Thanks for taking the time to s...Nice to meet you! Thanks for taking the time to stop by, and I hope the series will be a blessing to you. <br /><br />Enjoyed stopping by your blog as well, and following your series. =)<br /><br />Blessings,<br />RachelRachelhttp://www.blogger.com/profile/08581856966246498735noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-51931778340618448752012-10-03T15:16:43.641-04:002012-10-03T15:16:43.641-04:00Amanda...I&#39;m so sorry to hear of the struggles...Amanda...I&#39;m so sorry to hear of the struggles your son is facing! I know how exhausting the journey to receiving a diagnosis can be. Often it&#39;s the waiting and not knowing that are hardest.<br /><br />I appreciate you taking the time to share you thoughts in the comments (it&#39;s not rambling at all!) and I&#39;ll be prayirng for wisdom in your search for answers, for the doctors administering care/evaluations, and for strength for you along the way in caring for each of your children.<br /><br />Hang in there!<br /><br />((Hugs)),<br />RachelRachelhttp://www.blogger.com/profile/08581856966246498735noreply@blogger.comtag:blogger.com,1999:blog-2635546954960489257.post-7366626762977211652012-10-03T15:05:08.898-04:002012-10-03T15:05:08.898-04:00Selina...I understand you not choosing to share pu...Selina...I understand you not choosing to share publicly yet. There are still things I choose to keep just to our family (depending on the nature of such) and you have to do what is best for you and your child. I will be praying for you as you care for each of your children, and for an extra measure of strength for those with special needs.<br /><br />And you are right...ALL children are a blessing from the Lord! LOVE reading your journey of adoption through your blog =)<br /><br />Blessings,<br />RachelRachelhttp://www.blogger.com/profile/08581856966246498735noreply@blogger.com